Patient and Public Involvement and Engagement

Taking part in a clinical trial

Thousands of people with cancer are currently taking part in our clinical trials. Where possible, each clinical trial page includes a link to a plain English summary.

You can also find out more about getting support and taking part in clinical trials on Cancer Research UK and Macmillan Cancer Support websites.

Please speak to your cancer specialist to find out whether one of our clinical trials may be a suitable option for you, or someone you know.

Did you know that as a patient, carer, family member or a member of the community you could become involved in our cutting-edge cancer research?

Your input, whatever your age, gender, race, religion, location, or disability can help our research teams to develop new cancer treatments. Your input is valuable to us to help make sure our research is designed to include and benefit all those who will receive future treatments.

What is Patient and Public Involvement in Research?

Patient and public involvement (PPI) is where patients, carers, members of family and the community work with researchers to explore new or improved cancer treatments. PPI input is vital to our research at the ICR, as it provides researchers with valuable lived experience and opinions from a patient’s perspective.

Why get involved in research?

To work with research teams to advance and improve the understanding and treatment of cancer.
To add your lived experience of cancer treatment to the science of research.
To shape the quality of care for people with cancer in the future.
Join a network of over 50 patients and carers who regularly work us.

When and how do we involve members of the public in our research?

If you are interested in finding out more about helping with our research in this way, including the training we offer, please contact [email protected] or register for The ICR and Royal Marsden’s Cancer Patients’ Voice online platform to find out about current opportunities.

The patient voice can shape our research. Is your voice being heard?

Find out more about what this involves in our flyer.

You can also find out about opportunities to get involved elsewhere by visiting:

Patients have worked with us to develop a jargon-buster that might be useful when working with researchers, click to download

Current opportunities

Could you help us develop research for breast cancer?

DISTINCT is looking for the best way to collect information about personal characteristics from clinical trial participants. This will help us see who is taking part and make changes to ensure wider access to research. We are looking for people from a range of backgrounds to take part in our discussion groups and share their thoughts on our proposed questions.
For additional information please see our project flyer and infographic. If you have any questions, contact us on [email protected] or 07786 624372.